Authorization for Research
Effective Date: June 3, 2016
Join the movement! Share your data and you may help improve the lives of future generations.
You are about to embark on a journey to optimize your wellness. Your data will help establish your personal baseline for wellness and serve as the foundation for delivering personalized recommendations and coaching to help you achieve your unique wellness goals.
Your data may also help many others.
We are assembling a unique, de-identified data set to help researchers across the world develop a deeper understanding of what makes human beings thrive and hopefully deliver more effective solutions to advance human vitality and longevity. By sharing your de-identified data, you and your family may benefit from future discoveries.
When you consent to share your data, you are doing so on a de-identified basis. Your name, contact information, and other information that could personally identify you are not shared, and your data are only used in aggregate with that of others who have also chosen to do so.
Join the Arivale community to help advance science and human health—for you and for future generations.
You can do an amazing thing for health sciences researchers across the globe by allowing us to share your data in a de-identified, aggregated database of Arivale customers. “De-identified” means that your identify will be anonymous: although the database provides contextual information – gender, age, and ethnicity, for example – your name, address, or other information that could personally identify you are never included. “Aggregated” means that everybody who signs this authorization gets placed in one database. By agreeing to contribute your de-identified data to science, you’re opening the door to research into genetic markers, health effects associated with race or gender, and topics we can’t yet imagine.
You have been or will be participating in a program through which Arivale Inc. (hereafter “we” or “us”) obtain certain genetic and other biological information from you for the purpose of developing and providing you with information pertinent to your health and wellness. We are asking for your permission to remove personally identifiable information from the data we collect about you (i.e., to “de-identify” or “make anonymous”). The de-identified data will be made available to researchers studying human wellness and treatments that may eliminate some diseases. Your participation is voluntary. Please take as much time as you need to read this.
Arivale will comply with all applicable laws, take all reasonable steps to protect the unauthorized use or release of your de-identified data, and will require its partners, licensees and affiliates to do the same. However, by contributing data into this program, you acknowledge and agree that your de-identified health information may be shared with partners, licensees and affiliates of Arivale for research into, and development of products related to, but not limited to, human health, wellness, medical, nutritional, and pharmaceutical uses. By providing this authorization, you agree to such uses.
You will not receive any payment for your contribution of your de-identified data toward this data collection for research, wellness optimization, and potential disease prevention purposes.
The data that you permit us to de-identify and share will be separated completely from our other systems that contain your identifiable health information. Also, when the results of any research are published or discussed in conferences, no information will ever be included that would reveal your identity.
There are no anticipated discomforts for you in participating. With respect to the de-identified data that you are contributing, these include genetic and other biological and lifestyle information that is collected from you during the Arivale program, together with any health and wellness information and recommendations developed from such information. Specifically, they may include samples of your blood, stool, saliva and possibly other tissues for analysis of genetic and other biological information. They may also include de-identified health-related factors such as activities, environment, diet, medical or health conditions, health behaviors, mental health or stress-related challenges, and other factors, which you and other clients have provided or will provide through our application form, surveys, or through other communications.
As feasible and appropriate, all information contributed to the database will be handled securely including, for electronic delivery, through encryption and password protection. However, if such unauthorized use or release occurs, it could be harmful to you. For example, while certain laws protect a person from having his/her genetic data used against them as it relates to employment or healthcare insurance, it is important for you to understand that there is the possibility – however unlikely – that your genetic data could be linked back to you.
You can choose whether to contribute your de-identified data to this database or not. If you decide to do so, you may withdraw at any time without consequences of any kind. However, your decisions only apply to future disclosures of the data starting 30 days after you submit your request in writing to firstname.lastname@example.org and will not apply to third parties that have already obtained any files including your de-identified data from the database.